Greetings and well-met, we are the Hart-Thompson family and live in the Pacific Northwest of the USA.
This is a family’s journey through chronic illness – there is Anna (I’m mostly the author right now, but that will grow, too) the BorreliaEtc patient who will be turning 38 on the 6th of December. I moved back in with my parents at 22 years old, just short of 16 years ago.
Lorraine (me Mum) is my primary caregiver and fellow advocate. We run support groups every second Saturday in the Olympic Pharmacy and St. Anthony’s Prompt Care building in Gig Harbor, Washington. (Please contact us for more information: BorreliaEtc@gmail.com) Lorraine started our state’s first regular Lyme Awareness Rally which is held in May to correspond with other rallies across the country for “Lyme Awareness Month.” She started it 12 years ago!
Matthew is my (step) dad and the only other member of the family who was born and raised on Long Island, New York State, like I was. He’s recently retired and very passionate about people being treated fairly.
I also have an older brother Aaron (he was born in Vancouver, BC, Canada) who brings me Qigong practices to learn. (Visit http://www.chicenter.com if you’d like to to learn more.) If Aaron hears something serious has happened, like when my brain shut down last year (we still don’t know if I had a seizure, or what that was…) he drives straight down to show me special exercises that help with that specific trouble. By doing a “simple” breathing exercise (along with asking for Healing via Energy/Qi) where I envisioned breathing in a gentle mist and asked that mist to help my brain. ‘Please take the bad out,’ was the only thought that came to mind.
After the third breath I was back in my body, engaging and talking.
Matt and Aaron are my secondary caregivers, so if Lorraine has to go anywhere for more than an hour, I’m covered.
All is looking very good to continue training Saathee Shadow to be a service dog. She’s already alerting me when my pulse or BP drops. Helping take off my socks and pants. Sits on my feet, forcing the tendons to relax. She’s not yet 8 months old! She’s not yet a “service dog in training” – she’s still a puppy! A very intuitive one.
We live in Western Washington State. Is beautiful here: the forests, mountains and the seas are gorgeous! But there is a price to be paid by being on the “other” side of the Rocky Mountains. Professionals (medical personnel and general scientists) have been told that our environment protects us from ticks and the infections they carry. “Deer can’t climb over the Rockies!”
(Yes, a family practice doctor in the University of WA’s Medical Centre said that to me.)
“Perhaps, but they can migrate north from the Redwood Forest. They can swim across the Columbia River. But why are we talking about deer when birds are the main way ticks get around?”
WA is one of those places we hear, “there’s no Lyme here!” constantly from most of the medical profession. And even though we have an astonishing number of “Lyme doctors” here, there are many local people who have been through ILADS treatment (after following the joke of an IDSA treatment) AND been to many Lyme doctors AND have searched out many treatment modalities… but we are still searching for our health.
A lot of us.
There are so many sites out there which explain the science of tick infections, give advocacy help and/or guidance, or talk about the politics and the different sides of the controversy.
* http://www.whatislyme.com by our gorgeous friend Lisa
* the wonderful http://www.lymedisease.org
* http://www.livlymefoundation.org – I think Olivia is our community’s future
* http://www.natcaplyme.org with Monte doing incredible work in DC
* http://www.lymewarriors.us a special organization who help patients in need
* http://www.underourskin.com is one of the best documentaries on tick-borne infections and explains perfectly about patents and why “Lyme” is a controversial diagnosis
* http://www.ilads.org for doctors and researchers
* http://www.murakamicentreforlyme.org retirement couldn’t stop Dr. Murakami from speaking out and he’s now researching CBD oil’s efficacy for treating BorreliaEtc
* http://www.canlyme.com for Canadians
* http://www.lymediseaseuk.com for those in Ireland, Scotland, England and Wales
* http://www.lymeandcancerservices.com in Germany
…and so many others! This was just a list off of the top of my head.
We aren’t here to do that. We wanted to join a small but growing number of patients (and their families) that show the public what it’s like to live with vector-borne infections. What it’s like to have chronic illness interrupt not only a life, but an entire family’s life.
Instead of admitting defeat, we have found out what what being a family of warriors is truly about. And we still learn, every single day.
So, welcome to our page. This site is a work in progress, as all are, but this is still in its infancy. We want to grow in different ways, putting up videos and writings/blogs. We want to show people what it’s like to wake up each day and figure it out from there.
Each and every day is so different, sometimes I wake up and can make some tea.
Other days I wake up and run to the loo.
Or option 3: not even making it out of bed.
It’s going to be something of a bumpy ride, but we are glad to have you with us!
Anna (& Lorraine, Matt, Aaron, and Saathee)
By Lorraine Hart It’s May, and I find myself wanting to be on that grassy triangle at the Purdy traffic lights. This will be the first time in fifteen years I haven’t held our Washington Lyme Rally, holding my, “Lyme Lives Here” sign, and…
AJ, Mum (my Caregiver), and I have been working on a gentle session of Qigong suited especially for the chronically ill. We meet at 12:30pm (Pacific time) and follow a simple practice with AJ. Any level of ability is welcome to join! Movements we…
Qigong has been a game changer in my family’s health. My brother AJ brought us this lifestyle after turning his own life around.. He was a fast-paced urbanite living in NYC, selling high end furniture to some very big names. He had a lavish…
Harts Of Lyme is happy to be sponsoring WA’s 17th Annual Potluck Picnic for those who live with BorreliaEtc, complex chronic illnesses and their families/caregivers! We’ve booked Wapato Park, the Main Picnic Area for the 2nd Saturday of September. This is an absolutely beautiful…
The topic of Adverse Childhood Events is extremely important and relevant in our community. Dr. Burke Harris says very simply: when you, as a child, are exposed continually to traumatic events the hormones always in play can physically alter your growth. If you have…
From http://www.chicenter.com ‘s newsletter, this is focusing on energy in the healing process and is a really good read. Sometimes the most simple information is what smacks the hardest between the eyes. Qigong has been THE most helpful practice (some will say exercise, but…
My caregiver took this video of me after vaso vagal syncope hit – pulse went down into the low 50’s (edit: my caregiver informed me the day after I posted this that it went lower, into the 40’s) everything went blurry slowly and then…
The Global Lyme Alliance just shared that: The latest CDC data indicates that there are more than 427,000 new cases of Lyme disease in the U.S. each year. This is a 30% increase in just one year. (My emphasis.) The mice told us from…
It’s spring (!) some people said. They pointed to warmer temperatures and some flowers blooming in January. The CG (read: Caregiver) and I both said, hang on, it’s not yet February and you’re ready to declare Spring? I know we are headed that way…
Love only grows by sharing. You can only have more for yourself by giving it away to others. -Brian Tracy Through the years there have been several techniques we’ve learned to mitigate the symptoms and stress of life with BorreliaEtc as well as tips…
By Lorraine Hart It’s May, and I find myself wanting to be on that grassy triangle at the Purdy traffic lights. This will be the first time in fifteen years I haven’t held our Washington Lyme Rally, holding my, “Lyme Lives Here” sign, and…
AJ, Mum (my Caregiver), and I have been working on a gentle session of Qigong suited especially for the chronically ill. We meet at 12:30pm (Pacific time) and follow a simple practice with AJ. Any level of ability is welcome to join! Movements we…
Qigong has been a game changer in my family’s health. My brother AJ brought us this lifestyle after turning his own life around.. He was a fast-paced urbanite living in NYC, selling high end furniture to some very big names. He had a lavish…